Congressman Bill Pascrell

Representing the 9th District of NEW JERSEY

Pascrell, Kinzinger Introduce Bipartisan Huntington’s Disease Parity Act

May 22, 2017
Press Release

WASHINGTON, DC – Today, Congressmen Bill Pascrell, Jr. (D-NJ) and Adam Kinzinger (R-IL) reintroduced the Huntington’s Disease Parity Act, a bipartisan bill that ensures Medicare is made available to people with Huntington’s Disease (HD) – a devastating, degenerative, hereditary brain disorder that causes total physical and mental deterioration. 

The HD Parity Act is a critical piece of legislation to the tens of thousands of people across the United States battling this rare and fatal disease, as well as to their families who care for them. With dozens of original co-sponsors joining them in support, Congressmen Pascrell and Kinzinger are proud to lead this bipartisan effort, and shared the following statements:

“Individuals with Huntington's Disease confront profound challenges, facing emotional and financial obstacles in addition to the health struggles,” said Congressman Pascrell. “This important legislation would ensure better access to health care by eliminating the current two year waiting period for Medicare coverage for individuals disabled by their HD. These individuals and their families deserve any relief we can provide as they deal with this devastating disease.”

“The Huntington’s Disease Parity Act is instrumental in providing necessary medical access to those impacted by Huntington’s Disease. This bipartisan legislation is a targeted solution that will fix an outdated system for a very vulnerable group of people,” said Congressman Kinzinger.

Today, 30,000 Americans are known to have HD and an additional 200-250,000 children of a parent with Huntington’s disease have a fifty percent chance of inheriting the deadly gene from an affected parent. The Huntington’s Disease Parity Act waives the Medicare two-year waiting period for people disabled by Huntington’s disease.